News

2nd All Ireland Lymphoedema conference announced

LNNI is delighted to announce that the 2nd All Ireland Lymphoedema conference will be held on 13th November 2019 at An Grianan near Drogheda. Further details and applications forms will follow. Our 1st keynote speaker is Ms Rebecca Elwell who will present on dermatological conditions and how they impact on our care provision.

The Legs Matter coalition launches national campaign to raise awareness of lower leg and foot health

The Legs Matter coalition launches national campaign to raise awareness of lower leg and foot health

A national campaign to raise awareness of a significant but largely hidden health challenge was launched in Newcastle today. The Legs Matter campaign is designed to get the nation thinking and talking about, and taking action on leg and foot conditions, including non-healing wounds, varicose veins and oedema.  

It comes as research shows that the annual cost to the NHS of managing non-healing wounds is estimated to be up to £5.4 billion. Leg and foot conditions have also been shown to lead to loneliness and depression if people do not get the correct care. Despite this, conditions of the leg and foot do not currently receive the care or attention they urgently need. The campaign (which features real people living with leg and foot conditions) and sets out to change that. 

The campaign is led by a coalition of eight healthcare organisations including The Tissue Viability Society, The British Lymphology Society, Accelerate CIC, The College of Podiatry, The Society of Vascular Nurses, The Lindsay Leg Club Foundation, Foot in Diabetes UK and The Leg Ulcer Forum. The organisations have come together to make sure that anyone with a lower leg or foot problem understands their condition and gets the urgent care, attention and support they need.

Dr Una Adderley, Lecturer in Community Nursing at the University of Leeds and Tissue Viability Society Trustee, says: “We want the Legs Matter campaign to raise awareness of leg and foot problems and help people get the care and support they need. Our aim is to help doctors and nurses understand what these patients need and at the same time raise this issue as a commissioning priority for those who organise healthcare services.” 

The campaign is asking the public to stand up for their own leg and foot health by paying attention to their legs and feet, going to their pharmacist or GP if things aren’t looking right and demanding better or different care if your leg or foot isn’t getting better.

The campaign is also calling on healthcare professionals to recognise the signs and symptoms of lower leg and foot problems, talk to their patients about their lower leg and foot health and lobby for better services for patients. 

The Legs Matter collation will also be working with NHS decision-makers to increase awareness of how much inadequate leg and foot care costs the system, and to focus on shaping a system that makes legs and feet a higher priority.

Sources: To access campaign materials assets: https://www.dropbox.com/sh/96u4q3zm300y8dz/AAB2ZOiqjQVuTkzAZGt0bcCja?dl=0

National Institute for Health Research (NIHR) study conducted by Professor Julian Guest ii Briggs, M. & Flemming, K. 2007. Living with leg ulceration: a synthesis of qualitative research. Journal of Advanced Nursing, 319-328.

British Lymphology Society Conference, October 2018

 

 

British Lymphology Society 2016 - Consensus Document on the Management of Cellulitis in Lymphoedema

Cellulitis is an acute spreading inflammation of the skin and subcutaneous tissues characterised by pain, warmth, swelling and erythema. Cellulitis is sometimes called erysipelas or lymphangitis. In lymphoedema, attacks are variable in presentation and may differ from classical cellulitis. Most episodes are believed to be caused by Group A Streptococci (Mortimer 2000, Cox 2009). However, microbiologists consider Staph aureus to be the cause in some patients (e.g. Chira and Miller, 2010).

Some episodes are accompanied by severe systemic upset, with high fever and rigors; others are milder, with minimal or no fever. Increased swelling of the affected area may occur. Inflammatory markers (CRP, ESR) may be raised. It is difficult to predict response to treatment. Cellulitis can be difficult to diagnose and to distinguish from other causes of inflammation particularly in the legs e.g. lipodermatosclerosis. Cellulitis most commonly affects one leg only whereas lipodermatosclerosis more commonly affects both legs.

A Cochrane review concluded that it was not possible to define the best treatment for cellulitis in general based upon existing evidence (Kilburn et al 2010). Furthermore, the treatment of cellulitis in lymphoedema may differ from conventional cellulitis.

With this background, this consensus document makes recommendations about the use of antibiotics for cellulitis in patients with lymphoedema, and advises when admission to hospital is indicated. Prompt treatment is essential to avoid further damage to the lymphatics of the affected part which in turn may predispose to repeated attacks. 

BLS Positon paper for ABPI: informing decision making prior to the application of compression hosiery

LNNI and the TVNNI are pleased to help launch the BLS Positon paper for ABPI: informing decision making prior to the application of compression hosiery. LNNI and TVNNI developed a Best practice paper in 2016, on which this 2018 national consensus document is based.

LNNI welcome launch of Safefood posters: cereal, yogurts and energy drinks – the hidden sugar, fats and calories

LNNI would like to help raise awareness of the hidden sugars in our regularly consumed food by supporting the launch of the new Safefood posters: cereal, yogurts and energy drinks – the hidden sugar, fats and calories

What’s in your cereal? https://www.safefood.eu/Start/Healthy-Living/What-s-in-your-cereal.aspx

What’s in your child’s yoghurt? https://www.safefood.eu/Start/Healthy-Living/What-s-in-your-child-s-yoghurt.aspx

Lifting the lid on energy drinks https://www.safefood.eu/Healthy-Eating/Food,-Diet-and-Health/Eating-In/Drinks/Facts-about-energy-drinks.aspx

NI Leg Ulcer Forum Conference “Lymphorrhea Management” - 25th October 2018

PROGRAMME

8.30-9.30am Registration. Tea/Coffee. Exhibition viewing
9.30-9.45am Welcome and Opening Remarks
9.45-12.30pm The Chronic Oedema “Wet Leg” (Lymphorrhoea) Pathway
Karen Morgan National Lymphoedema Research and Education Lead in Wales
12.30-2.00pm Lunch & Exhibition Viewing
2.00-3.00pm Delegate Question and Answer Session/Expert Panel
3.00-3.45pm Legal Issues in Nursing
Rosemary Wilson Legal, Health and Social Care Education
3.45-4.00pm Close

Conference Fee: £35

Courses available from Arthritis Care Northern Ireland

Arthritis Care Northern Ireland are working with LNNI to encourage those with mobility issues to attend some of their excellent courses across the region. These range from one-to-one sessions (in your own home) to local facilitated group sessions. They also run classes for carers which is wonderful!

Details can be found by phoning 028 9078 2940 or linking via nireland@arthritiscare.org.uk or www.arthritiscare.org.uk

Wider Fitting Shoes listing update

The list of suppliers of wider fitting shoes has been updated on the website. You can access the latest directory of outlets below

 

 Wide Fitting Shoe Outlets-updated April 18.doc

8th International Lymphoedema Framework Conference - 6 Jun 2018 to 9 Jun 2018

8th International Lymphoedema Framework Conference 6-9th June 2018, Rotterdam, The Netherlands. 

Conference website: http://2018ilfconference.org. The preliminary programme is now available.

Location

SS Rotterdam
3e Kartendrechtsehoofd 25
3072 AM Rotterdam,
The Netherlands

Conference website
http://2018ilfconference.org

Lipoedema UK Members Conference & Workshop 2018

Join us for a relaxing and inspirational weekend starting with our AGM on the 29th June followed by our Members Conference & Workshop 29th June - 1st July. A mix of expert speakers, people living with Lipoedema, discussion groups, workshops, pool, yoga and much more. Hear about personal experiences of surgery and post surgical life, presentations on the pros and cons of compression. Nurse consultation sessions will be on offer.

Click here for more info

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