News

2020 BLS Conference sees launch of new resources

LNNI is happy to announce the launch of the following at the 2020 BLS Conference:

  • 2020 Chronic Oedema best practice document
  • 2020 BLS Red Legs Pathway
  • 2020 St Georges’ updated primary lymphoedema diagnosis pathway
  • 2020 European Lipoedema Consensus document

 

Legs Matter Week 12-16th October 2020 - legsmatter.org/legs-matter-week/

Lipoedema UK AGM – 24th September 2020 2.00pm

Dear Members,

As the year has flown by, it is time for another AGM. Whilst we are sorry not to be able to meet in person this year, we hope you’ll join us online to catch up on what we have been doing. 

We love to know how you have been coping during Covid, your views and input about what we've been doing on your behalf and we are always keen to chat to people who would like to volunteer or get more involved, 

However there are a few formal things we need to do, so the formal agenda will be:
1 - Approve minutes from last year (will send out to attendees by email)

2 - Elect the Trustees: - Sharie Fetzer (Chair), Kate Forster (Treasurer & Secretary), Suzanne Evans and Lucinda Evans are all willing to stand again.

3 - Update from us on what we've been doing this year, including our Trustees Annual Report & Accounts (and what our current plans and priorities are as we know it's hard to just talk about last year!)

If there is anything you want to raise for the agenda please email Joella@lipoedema.co.uk by Sunday 20th September.

Like many other charities, we have seen significant impact from the Covid-19 pandemic, including reduced opportunities for people to fundraise for us.  Although there are less events where healthcare professionals are gathering in person, we are continuing to work on raising awareness of lipoedema and continue to need funds. 

Please remember your membership subscription helps fund our activities, from our surveys, working with healthcare professionals (like the Royal College of GPs training module which has been free to access for much of the summer this year) to creating new materials for raising awareness of lipoedema, launching our new online Members Health & Wellbeing Community and much more. 

Please also spread the word about membership and our resources to both healthcare professionals and people with lipoedema.  The stronger our membership, the stronger our voice.

Together we can beat Lipoedema!

We really look forward to you joining us virtually on Thursday 24th September and thank you for your membership and support. 

Click HERE to attend Lip UK AGM 

Sharie
Kate
Lucinda
Suzanne
Lipoedema UK Trustees

Biomarker for lipoedema

Dr. Stanely Rockson, a foremost cardiologist, a champion for lymphatic disorders and researcher has published new research that identifies the first biomarker for lipoedema - one that links lipoedema to the other lymphatic diseases, including lymphedema

This means there is now a diagnostic test that can be performed for lipoedema.

Platelet factor 4 is a biomarker for lymphatic-promoted disorders.

Wanshu Ma, Hyea Jin Gil, Noelia Escobedo,Alberto Benito-Martín, Pilar Ximénez-Embún, Javier Muñoz, Héctor Peinado, Stanley G. Rockson and Guillermo Oliver

First published June 11, 2020 https://insight.jci.org/articles/view/135109

Lipoedema UK Health & Wellbeing Community - A Membership Benefit

Lipoedema UK are excited to offer online sessions – places are limited, for members only, and you will need to book on to reserve your place. 

The first session launches on Thursday 6th August and will continue weekly at the same time, for three months. Initially members will be able to book on the August and September sessions. Booking for the remaining sessions to follow at a later date.

The aims of the programme are to provide a combination of various health and well-being topics, presentations and exercises, specifically for the benefit of our members. 

We will be having a regular monthly Nurse Q and A session, but otherwise all information shared is for general interest and personal consideration.

We hope this will be an opportunity for all to come together as a community, without judgement. This will be a space where we can feel safe, understood, freedom to participate if you choose to.

We are confident our programme will result in an increase in our knowledge, it will update us on related issues and enable us all to enhance our physical, mental and emotional wellbeing living our lives with Lipoedema.

FORMAT OF SESSIONS:

The sessions will be delivered on the Zoom platform (you will be sent all the relevant information on how to use zoom if you sign up to a session/sessions). 

You will be able to sign in from 12:15, in readiness for a prompt start at 12:30. Conclusion at 13:15hrs.

Our launch session will include introductions and an explanation of the programme by Sandra, together with a bite size health and well-being activity. There will be a presentation on various health and well being topics on the first Thursday of every month thereafter.  

The third session each month will provide an opportunity for one of our Nurses to answer member questions, regarding the health implications and management of living with Lipoedema. There may also be presentations from other medical professionals on topical Lipoedema health related information.

The remaining sessions each month will be focussed on a physical exercise and/ or a health and well-being activity.

As this is an exciting and new initiative, we will be inviting you to complete a questionnaire on completion of the first eight sessions to assess your thoughts about the programme and hopefully some ideas and suggestions as to what you would like us to include in future sessions, to be able to meet your expectations as best we can. This is OUR health and well-being community and your constructive feedback is welcomed.

BOOKING DETAILS

To Book on all or any of the first eight sessions please click below.

You will receive email instructions on how to prepare for a session and useful tips on using "ZOOM". You will need to agree to abide by our community rules which will also be made available to you should you wish to book.

Lipoedema UK Members Only

CLICK HERE TO BOOK

Complimentary online access to summer 2020 issue of Pathways Magazine.

The Canadian Lymphedema Framework is providing a one-time complimentary online access to its summer 2020 issue of Pathways Magazine. This issue has valuable information as well as personal COVID-19 stories that will help people connect during this time of uncertainty. In addition, two feature articles – ‘The Bidirectional Interaction between Obesity and Lymphatic Injury’ by Dr Babak Mehrara and Dr George Kokosis and ‘Reading Evidence Reviews During COVID-19 and Beyond’ by Dr Rhian Noble-Jones – will be of interest to both patients and health professionals. Enjoy your reading!

 

ILF Webinars

The ILF is proud to present a new series of webinars on lymphoedema-related topics. The webinars will focus on selected ILF key topics, such as genital lymphoedema, children with lymphoedema, outcome measures, LIMPRINT and lipoedema. The topics will be presented by members of the ILF Board of Directors and other international lymphoedema experts.

The first webinar on Problem-solving in complex chronic oedema: The case of compression will be presented by Professor Christine Moffatt, CBE, UK, and RN Susan Noerregaard, DK, in September 2020.

Dates and programme will soon be available at www.lympho.org

LNNI welcome new BLS Factsheets

LNNI are pleased to support the work of the BLS and the production of the latest Factsheets. These can be found in either the ‘patient resource’ or ‘ Health care Professional Resource’ sections, and are short summaries to support care and development.

Educational Opportunities for Lymphoedema Assistants (LA) and Lymphoedema Assistant Practitioners (LAP)

Who has a predisposition to lymphoedema and why?

Lymph Facts - Understanding and managing Lymphorrhoea in the community

Lymph Facts - Activity and Exercise

Why it is important to keep activity when you have oedema or lymphoedema

 

Chronic Oedema & Lymphoedema Free Online Course

Event date: 

20 Jul 2020 to 27 Jul 2020

 

Organiser: 

University of Glasgow

 

Type of event: 

Training

Back due to popular demand:

Free Introductory online course for chronic oedema and lymphoedema. Ideal for health professionals managing patients swollen legs in community, hospital or nursing home.
CPD certificate for the equivalent of 6 study hours. 

Study for around an hour every day for 1 week at a time to suit you.
Available from Monday 20th - 27th July.   

Register by 14th July for your free entry code lymph@glasgow.ac.u(link sends e-mail)

https://www.gla.ac.uk/schools/medicine/nursing/cpd/slm/#freeonlineintroductorycourse-weekcommencingmonday20thjuly2020

Royal College of GPs provides free access to lipoedema e-learning course up to 30th June 2020

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